Ewing sarcoma is a cancer that arises from bone or the soft tissue around bone. It most commonly occurs in the spine, pelvis, chest, arms or legs. It sometimes will spread to the lungs.

Symptoms can include:

  • A lump in the arm or leg bone

  • Pain in a bone

  • Swelling or warmth near a bone

  • Bone pain that does not get better over time or lasts longer than expected for a minor injury

  • Limping

Diagnosis of Ewing sarcoma

To diagnose Ewing sarcoma, your child’s doctor will do an exam, take a detailed medical history and order some tests. Tests can include:

Treatment for Ewing sarcoma can include one or all of the following:

  • Chemotherapy

  • Radiation therapy: High energy X-rays are used to shrink tumors and prevent them from growing

  • Surgery 

  • Amputation: In rare cases, Ewing sarcoma cannot be completely removed by just removing the tumor and an amputation of the affected limb might be needed.

Understanding pediatric cancer

Our UW Carbone Cancer Center specialists offer the most advanced treatment options. Our pediatric cancer and blood disorder experts are national research leaders. We test new therapies and continue to work on therapies for pediatric cancer and blood disorders. For many children with rare or hard-to-treat conditions, clinical trials provide new options.

Search our clinical trials

Smiling child with sign reading UW Health Kids
UW Health Kids
Our pediatric experts have served the special needs of children for more than 100 years. We focus on each child’s unique needs and offer social and emotional support to help you and your child face even the most complex condition. Our long history includes the creation of medical advances that save lives around the world. Together, we get your child back to health and enjoying being a kid.

Receiving care from the UW Health Kids | Carbone Cancer Center hematology, oncology and bone marrow transplant program at American Family Children’s Hospital means you have access to the knowledge and skills of many medical and support specialists for your child’s complex health diagnosis like cancer.

  • American Family Children's Hospital Pediatric Hematology and Oncology Clinic
    • 1675 Highland Ave / Madison, WI
    • (608) 263-6420
  • American Family Children's Hospital Pediatric Stem Cell Transplant and Cellular Therapy Clinic
    • 1675 Highland Ave / Madison, WI
    • (608) 263-6420

Your child’s team will include:

  • Oncologists (cancer doctors)

  • Hematologists (blood disease doctors)

  • Mental health specialists (health psychologists)

  • Nurse practitioners

  • Child life specialists

  • Pain and symptom management specialists (doctors and advance practice providers)

  • Pharmacists

  • Physical, occupational and speech therapists

  • Radiologists and radiation technologists

  • Social workers

  • Orthopedic surgeons

When your child needs hospitalization, they will be admitted to American Family Children's Hospital in Madison, Wis.

Child life specialists help your child and family cope with any fears and anxieties. The American Family Children's Hospital Patient and Family Visitor Guide features information about:

  • Hero beads

  • Hospital school

  • Positive Image Center

  • Restoring Hope Transplant House (for blood and bone marrow transplant recipients)

  • Spiritual care services

  • Tyler's Place (sibling child care)